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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Clouston Syndrome near Salt Lake City, UT. Of these, 10 are Experienced, 2 are Advanced and 2 are Distinguished.

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    LocationClose
    14 providers found
      Sancy A. Leachman
      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      Dermatology Division University Of Utah Medical Center

      50 N Medical Dr, 
      Salt Lake City, UT 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sancy Leachman is a Dermatologist in Salt Lake City, Utah. Dr. Leachman is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Pachyonychia Congenita, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy. Dr. Leachman is currently accepting new patients.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      Dermatology Division University Of Utah Medical Center

      50 N Medical Dr, 
      Salt Lake City, UT 
       (2.8 miles away)
      Languages Spoken:
      English, German
      Accepting New Patients

      Charles Hansen is a Dermatologist in Salt Lake City, Utah. Dr. Hansen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Pachyonychia Congenita. Dr. Hansen is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Clouston Syndrome
      Medical Genetics
      Advanced in Clouston Syndrome
      Medical Genetics

      University Of Utah Pediatric Genetic & Metabolism Clinic

      81 North Mario Capecchi Drive, 
      Salt Lake City, UT 
       (2.6 miles away)
      Experience:
      40+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Viskochil is a Medical Genetics provider in Salt Lake City, Utah. Dr. Viskochil has been practicing medicine for over 40 years and is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Dr. Viskochil is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Dermatology Division University Of Utah Medical Center

      50 N Medical Dr, 
      Salt Lake City, UT 
       (2.8 miles away)
      Languages Spoken:
      English, Japanese
      Accepting New Patients
      Offers Telehealth

      Mark Eliason is a Dermatologist in Salt Lake City, Utah. Dr. Eliason is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pachyonychia Congenita, Actinic Keratosis, Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Eliason is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of Utah Dermatology Department

      50 North Medical Drive East, Suite 13, 
      Salt Lake City, UT 
       (0.2 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julia Curtis is a Dermatologist in Salt Lake City, Utah. Dr. Curtis has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Lichen Sclerosus, Pachyonychia Congenita, Actinic Keratosis, and Acrospiroma. Dr. Curtis is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Ihc Health Services Inc

      Salt Lake City, UT 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lana Pho is a Dermatologist in Salt Lake City, Utah. Dr. Pho is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurocutaneous Melanosis, Giant Congenital Melanocytic Nevus, Giant Congenital Nevus, and Familial Atypical Multiple Mole Melanoma Syndrome. Dr. Pho is currently accepting new patients.

      Experienced in Clouston Syndrome
      Pediatric Otolaryngology | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Otolaryngology | Pediatrics
      100 N Medical Dr, Suite 4500, 
      Salt Lake City, UT 
       (2.5 miles away)
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Johannes Grimmer is a Pediatric Otolaryngologist and a Pediatrics provider in Salt Lake City, Utah. Dr. Grimmer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Croup, Arteriovenous Malformation, Laryngomalacia, Adenoidectomy, and Endoscopy. Dr. Grimmer is currently accepting new patients.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      University Of Utah Pediatric Services

      81 N Mario Capecchi Dr, 
      Salt Lake City, UT 
       (2.6 miles away)
      Languages Spoken:
      English, Italian
      Accepting New Patients
      Offers Telehealth

      Lorenzo Botto is a Medical Genetics specialist and a Pediatrics provider in Salt Lake City, Utah. Dr. Botto is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Gastroschisis, Omphalocele, Increased Head Circumference, and Brachydactyly Mononen Type. Dr. Botto is currently accepting new patients.

      Experienced in Clouston Syndrome
      Pediatric Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology

      Primary Children's Neurology Clinic - Salt Lake City

      81 North Mario Capecchi Drive, 
      Salt Lake City, UT 
       (2.6 miles away)
      Experience:
      27+ years
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Joshua Bonkowsky is a Pediatric Neurologist in Salt Lake City, Utah. Dr. Bonkowsky has been practicing medicine for over 27 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      100 Mario Capecchi Dr, 
      Salt Lake City, UT 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sheryll Vanderhooft is a Dermatologist in Salt Lake City, Utah. Dr. Vanderhooft is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Vanderhooft is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurology | Pediatrics
      Experienced in Clouston Syndrome
      Neurology | Pediatrics
      100 Mario Capecchi Dr, 
      Salt Lake City, UT 
       (2.7 miles away)
      Languages Spoken:
      English

      James Bale is a Neurologist and a Pediatrics provider in Salt Lake City, Utah. Dr. Bale is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Encephalitis, Herpes Simplex Encephalitis, Rubella, and Aicardi-Goutieres Syndrome.

      Experienced in Clouston Syndrome
      Plastic Surgery | Pediatrics
      Experienced in Clouston Syndrome
      Plastic Surgery | Pediatrics
      50 N Medical Dr, 
      Salt Lake City, UT 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      William Rockwell is a Plastic Surgeon and a Pediatrics provider in Salt Lake City, Utah. Dr. Rockwell is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Venous Thromboembolism (VTE), Epidural Lipomatosis, Systemic Sclerosis (SSc), and Breast Enlargement In Males. Dr. Rockwell is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Dermatology Division University Of Utah Medical Center

      50 N Medical Dr, 
      Salt Lake City, UT 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lauren Madigan is a Dermatologist in Salt Lake City, Utah. Dr. Madigan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are DRESS Syndrome, Pyoderma Gangrenosum, Porphyria Cutanea Tarda, and Acute Febrile Neutrophilic Dermatosis. Dr. Madigan is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      50 N Medical Dr, 2c412 Som, 
      Salt Lake City, UT 
       (2.8 miles away)
      Languages Spoken:
      English

      Irene Hung is a Pediatrics provider in Salt Lake City, Utah. Dr. Hung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ellis-Van Creveld Syndrome, Chondrodystrophy, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Brachydactyly Mononen Type.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Salt Lake City, UT?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Salt Lake City, UT?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Salt Lake City, UT?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Salt Lake City, UT?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Salt Lake City, UT?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Salt Lake City, UT?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Salt Lake City, UT?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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